My Endo Poem

My Grandparents wrote me a little poem so I thought I would share it with you all...

It’s Endometriosis, Endo for short Something your born with, It cannot be caught Affecting just women, With no signs to show The men are so lucky, They just don’t know how The women who has it, They say one in ten There’s not much to help them, The condition to stem Endo is bad But there is Adeo as well If you have them both It does make life Hell Our Grand-daughter has them both And we know she’s in pain Just what is Life there for, It happens again and again We Love her so much And stand by her side She’s a Lovely Young Lady, And her Grandparents Pride

World Mental Health Day

I'll be the first to admit that I've always been a bit cynical about mental health. All of a sudden everyone had a mental health issue. And sometimes its just felt like an excuse. But I have watched others around me, close friends, go through really tough times. I've ridden the highs and the lows with them too. One minute everything is fine and the next you're trying to calm down the frantic crying person in front you, trying to make them realise that life is worth living. But fortunately I'd never experienced what they were going through for myself. I'd never questioned my life or the future I had mapped out for myself. But I have felt low. Like really really low and I've certainly been to a very dark place all thanks to my Endo and Adeno...

Some days you feel like you're on top of the world. Those days usually come with limited pain. And when those days seem to come so few and far between, it really is an amazing feeling. The days where you don't …

”We’re in desperate times”

Yesterday was the hospital appointment I've been waiting for since February this year. Its been a long and hard 7 months, with my symptoms getting worse and my emotions getting harder to control. I wasn't expecting much from the appointment knowing that my surgery is in 12 weeks time but it still managed to hit me like a train. Reality can be a bastard like that...
The statements "We are in desperate times. We have no other options" or "your case of Adenomyosis is the most prominent case I have ever seen, and if I needed to share an example of the disease with my students, yours would be the one I would use" or "I know you’re only 27, but I can now justify doing a hysterectomy" were things I wasn't quite ready to hear. I thought I was, but in reality I’m not sure anyone truly is. I’ve known for a while that my options are pretty non existent. We’ve tried the various hormone treatments, the uterine embolisation and pain medication with no succ…

Self care

We all know the frustrations we feel when an endo flare up hits. And it's always when we least expect or want it to happen! I've struggled with the frustration element massively but I've learnt along the way the importance of accepting it and trying not to feel guilty for the disease.

The below article is a great read on 5 tips for self care during a flare up. Have a read and see what you think.

What are your self care tips?

A x

Infertility & Acceptance

Yesterday bought the fourth of our North Essex Endometriosis UK support meetings and a chance to meet up with the ladies I now am lucky enough to consider my friends.

As always we covered some interesting topics but one in particular really made me think about my situation. Infertility and acceptance. As you know many women with Endometriosis suffer with infertility, and for those of us with Adenomyosis we often face the prospect of a hysterectomy at some point in our lives. For many, that is a bitter and hard pill to swallow, regardless of your age. But as one of those women who were diagnosed and given this news at an early age, I have felt like a ticking time bomb ever since.

The question was asked in the group yesterday whether having the diagnosis at an earlier age would have been preferable from a fertility point of view compared to someone who was diagnosed with Endo at a later age...

When I was given the news at the age of 23, I was instantly told that if I wanted a baby, I ne…

Endo 1 - Amy 0

Its been a while since I've been online. In all honesty I've been struggling with giving Endometriosis more of my time then it deserves. When I started this blog it motivated me and I genuinely felt like it was helping me. But recently, its been the last thing I've wanted to do. Why do I want to talk about something that has already taken so much from me. Why would I want to talk about something I have nothing positive to say about. Why would I spend my time writing about something that has consumed so much of my time already...Well, I guess I probably write about it for all three of the reasons that I've just written. So here I am, writing, again.

Its been a few months since I had a real bad flare up. 6 months in fact. I've been fortunate to be able to deal with the general day to day pain. Even when it creeps up on me and hits me a little harder, I've been able to cope. Managing it with over the counter pain medication and choosing to be stubborn and work th…

Support Group Reminder

Hi All,

Just a reminder that tomorrow hosts our next North Essex Endometriosis UK support group. Come along 10.00 - 12.00 at Myland Parish Church Hall, Colchester. Absolutely everyone is welcome, so please come along for a cuppa and a biccie.

Hope to see some of you there!

A x